02
Mar
10

The Guardian – useless as usual

N.B. Posting this a few weeks after writing it. Sat on it
for a bit of time. Forgot about it. Thought I might as well
post it now, faults an’ all – untouched, other than for
this Nota Bene.

I came across a Guardian report on the Kay Gilderdale case
the other day. For those who are not familiar with the case,
Kay Gilderdale’s daughter Lynn was diagnosed with
Myalgic Encephalomyelitis and was bedridden as a result
of the extreme ill health that she suffered. Lynn Gilderdale
died in December 2008. Kay Gilderdale is in court accused
of the attempted murder of Lynn. Kay Gilderdale has admitted
aiding and abetting suicide.

Both the BBC News online and Guardian online reports
referred to the diagnosis as “Myalgic Encephalopathy”.

I wrote to both the BBC and the Guardian about the inaccuracy
of this name, stating that the World Health Organisation*
uses the term “Benign Myalgic Encephalomyelitis”,
often abbreviated to “Myalgic Encephalomyelitis”
or more often “ME”.

The BBC, to their credit, corrected the mistake.
http://news.bbc.co.uk/1/hi/england/sussex/8466112.stm

However, what follows is a brief email exchange between me and
‘user help’ at the Guardian. Me first………..

Dear Sir or Madam,

The story about Kay Gilderdale and the death of her daughter
includes an error. Your piece refers to “Myalgic Encephalopathy”.
The World Health Organisation, under G93.3 of their International
Classification of Diseases, lists “Benign Myalgic Encephalomyelitis”,
usually shortened to ‘Myalgic Encephalomyelitis’ or ‘ME’.

link to Guardian story:
http://www.guardian.co.uk/uk/2010/jan/18/mother-court-me-daughter-death?CMP=AFCYAH

link to classification of ME:
http://apps.who.int/classifications/apps/icd/icd10online/gg90.htm

answer from ‘user help’……..

The ME Association say on their website:

“ME is the common name for Myalgic Encephalopathy, sometimes also
known as Myalgic Encephalomyelitis”.

http://www.meassociation.org.uk/index.php?option=com_content&view=category&layout=blog&id=38&Itemid=173

final email – me to them……

> The ME Association say on
> their website:
>
>
>
> “ME is the common
> name for Myalgic
> Encephalopathy, sometimes also known as Myalgic
> Encephalomyelitis”.

The World Health Organisation is somewhat more important
than the ME Association.

The Myalgic Encephalo(pathy)myelitis Association outranks the
World Health Organisation*!
Is it arrogance, stupidity, laziness or agenda from the Guardian?

Note that even though they quote from from the MEA’s site (“ME is the common
name for Myalgic Encephalopathy, sometimes also known as Myalgic Encephalomyelitis”),
the Guardian do not mention “Myalgic Encephalomyelitis” at any point in their report.
As for “Myalgic Encephalopathy, sometimes also known as Myalgic Encephalomyelitis”,
that is utter disingenuity. It’s nearly always referred to as “ME”, increasingly referred
to as “Chronic Fatigue Syndrome” or the even more ******* awful “Chronic Fatigue”.

Now indulging in this little rant probably won’t change the opinions (dare
I say pre-conceived notions?) of those who possibly write for the Guardian
and others but the comically arrogant bollocks of the type that I received
and have read from the Guardian over the years (yes I know but I don’t buy
the paper or buy from any of their advertisers) just ***** me off.

*yes I know it’s with a ‘zee’

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