Archive for November, 2010


Another councillor, another twat!

This one merely wants to stone someone to death!

Step forward Conservative councillor for Birmingham Gareth Compton!

Choice bits from this BBC News story:

Mr Compton allegedly tweeted: “Can someone please stone Yasmin Alibhai-Brown to death?
I shan’t tell Amnesty if you don’t. It would be a blessing, really.”

That word “allegedly” rather implies that there was some doubt…….

Later, he wrote on Twitter that he had not called for the stoning of anybody.


He said: “I made an ill-conceived attempt at humour in response to Yasmin Alibhai-Brown
on Radio 5. I [apologise] for any offence caused, it was wholly unintentional.”

I take it that you did say it then, Gareth?

That blond hair doesn’t make look Aryan in any way, does it?
I wonder is he friends with a fellow Tory councillor who I talked about
a few weeks ago


What is the point of the “crinkle cut” chip?

What is the point?

Does it taste any better?
Does it retain less fat?
Does it look nicer?

Why buy crinkle cut chips?
What do they offer that normal chips don’t?

Please tell me.

UPDATE: Someone via Facebook (alert came through to me – I didn’t go to Facebook
myself) that they like the crispiness of crinkle cut chips and it suddenly occurred to me
that, if you think about it, CC chips have a greater surface area! Instead of a straight
line or edge, the crinkled nature of the chip leads to more surface area to be cooked
hence possible increased crispiness!

Thank you to Chris for the start of that train of thought.


Phew, what a scorcher!

Haven’t been out for a couple of days but had to go out for some rolls and chocolate drinks.
As a result I’ve discovered it is unseasonably warm. In fact I’m on my way to the supermarket
and I’ve had to take my jacket off to reveal a short-sleeved top – and I do not feel at all cold!

And this is London!
In November!
In the evening!


Next APPG on ME – 09/11/2010

Well as I somewhat suspected when I noted my observations back in March this year, the
APPG (All Party Parliamentary Group) meetings on ME are due to return without public
participation. The meetings are after all parliamentary so it should be no surprise
at all that they should return to that.

However, I have a suspicion that another reason may have also played a part –
the meetings went public. With consequences.

Let’s see….
What do you get when you have a load of people, probably quite a few with different
illnesses but given the same diagnosis, left to rot by the medical profession, mostly
unhappy with the fashionable crap that is Cognitive Behavioural Therapy being the only
‘official’ treatment when for many a physiological trigger followed by physiological
problems leads them to think that it’s….errr….physiological?

You get a bunch of people who are not really terribly happy with the status quo.

What do you get when a parliamentary meeting is held about these people and they are
allowed to attend?

Unhappy people telling politicians they are not happy and sometimes letting their
unhappiness show.

Quel(le) surprise.

Who’d have thought it?
Democracy resulting in hard-nosed politicians being presented with problems by those
that democratically elected them!

My previous blog entry in which I berated those in the ME ‘community’ for not being mentally
tough enough to campaign effectively has been probably my least viewed blog entry of all
time. I am not at all surprised. It confirms exactly what I thought – people are afraid of
confronting it. We now have a situation where people in power are talking about us
*without* us, to paraphrase a memorable quote from a contributor to the NICE judicial
review series I recorded last year

The video clips of the ME blood ban protest last Monday have proved to be the most
immediately watched clips on ME that I’ve ever uploaded to YouTube. Again that does
not surprise me. The clips are unthreatening almost uplifting. There is almost a ‘burying
the head in the sand’ quality about them. I shall no doubt either be criticised or
ignored for this and other similar posts but therein lies the problem. There are very
real and so far insurmountable difficulties in patients attempting to gain physiological
treatment when diagnosed with ME and, as a result, we absolutely have to accept that
the situation is difficult and that situation has to be challenged.

Pressure must increase, not stay at the same level or drop off.
XMRV may or may not answer some questions but the longer thorny issues are avoided,
the longer we will all be here.

Is that what you want?


Vive la difference….please.

Now I had a post the other day which mentioned the 12th of May as “INTERNATIONAL
AWARENESS DAY…..FOR INVISIBLE ILLNESSES”. Not to put too fine a point on it, the
name filled me with horror. One of the main criticisms of “Chronic Fatigue Syndrome”
is the “dustbin diagnosis” nature of its name and contents. CFS is, in effect, a dumping
ground for anything that the medical profession cannot deal with or which would
slightly inconvenience them.

To the outside world – not everyone has been diagnosed with CFS or ME or whatever
somebody wants to call it today – “awareness days” are seen as a bit of a joke.
This may not be obvious to us in the ME world but ‘out there’, it is a reality.
To tag onto it the term “invisible illnesses” is almost suicidal.

Campaigning should have at least one eye on the public for it is them, apart from
those few who wield power, that campaigners try to win over.

However there is another point to this.

The internet list “co-cure”, a message board seemingly devised for the posting of
notices regarding ME/CFS, is now a list for ME, CFS and fibromyalgia. I have not
posted there in some time. The muddying of the waters that co-cure, “international
awareness day….for invisible illnesses” and other homogenising ventures are undertaking
are burying, ironically enough, the awareness of ME.

I have nothing against those diagnosed with fibromyalgia for they deserve medical
treatment as well and I have no personal gripe against those behind the awareness
day for invisible illnesses but I do have a big problem with the idea for homogenisation.
it makes an already cloudy water utterly muddy.

There is a final point though….

I find it interesting that I have noticed very little resistance and, in many ways,
an opening of arms by some in the ME ‘community’ to this homogenisation.
One of the reasons why I’ve increased the amount of posts on this blog is because
I now have the ability to say what I damn well like. I have spent years being suspended
and expelled from various ME lists invariably by very weak people. I don’t mean physically
weak (although they may be, of course) but by mentally weak people. In fact one of the
list owners who banned me later admitted that he was “scared” of me.

As I hinted at earlier, sorry to those who want a list to be for more people or
an awareness day for more people but I want the opposite. Get your own
‘awareness days’ and for f*** sake PWMEs, please stand up for yourselves or at
least let people with some balls who feel this way stand up instead of banning them.


A ridiculous offer just spotted in Tesco

Buy one get TWO free – offer ends in about four hours time.

Yes I know Pringles tend to be…err…a bit ‘processed’ but I couldn’t help it.


Video clips from Whitehall

A couple taken on a mobile phone: